University of South Florida

Posts Tagged Friedreich’s ataxia

USF Health $5.6 million study to define link between genetics and heart disease in many Friedreich’s ataxia patients

Researchers at the USF Health Morsani College of Medicine were awarded $5.6 million of expected funds for a 4-year study from the U.S. Department of Defense to examine […]

Clinic integrates care and genetic research for patients with neuromuscular disorders

USF Health has established a Neurocardiogenetics Clinic focused on improving the quality of life for patients with hereditary neuromuscular disorders who are at risk for or already experiencing […]

Symposium highlights new research by industry leaders seeking first treatment for Friedreich’s ataxia [video]

Hosted by FARA and the USF Ataxia Research Center, the annual scientific symposium emphasizes a patient-centered approach to research For the first time in its seven-year history, the […]

USF Health and FARA to host Sept. 17 scientific symposium

Pharma, biotech leaders will discuss several new clinical studies testing drugs and gene therapy for Friedreich’s ataxia Tampa, FL (Aug. 31, 2015) — The University of South Florida (USF) […]

FDA fast tracks Friedreich’s ataxia drug undergoing testing in USF-led trial

The U.S. Food and Drug Administration yesterday designated fast-track status to EPI-743 for the treatment of Friedreich’s ataxia – a move that will help accelerate clinical development of […]

Edison, FARA and USF announce EPI-743 Phase 2 Friedreich’s ataxia clinical trial in adults with point mutations

First patient enrolled to evaluate investigational drug’s effectiveness  in rare Friedreich’s ataxia genotype Mountain View, CA; Downingtown, PA; & Tampa, FL (Nov. 4, 2013) — Edison Pharmaceuticals, the […]

Scientific symposium covers research behind the “therapeutic revolution” in Friedreich’s ataxia

A record crowd of more than 200 attended the fifth annual Scientific Symposium hosted Sept. 5 by USF and the Friedreich’s Ataxia Research Alliance  (FARA). There was standing […]

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USF leads national clinical trial testing potential Friedreich’s ataxia drug

Natchez Hanson considers one of her proudest accomplishments walking across the stage to receive her college diploma – earning a bachelor’s degree in math education.   Hansen, 24, now […]

Scientific symposium to share latest advances in ataxia research [VIDEO]

Friedreich’s Ataxia Research Alliance and University of South Florida host Sept. 5th event Tampa, FL (August 28, 2013) – Leading scientists and clinicians searching for a treatment for […]

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